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The crisis will affect research on rare diseases

The economic crisis may slow the momentum of research on rare diseases (RES) as the coordinator of the Strategy on Rare Diseases National Health System, Francesc Palau (pictured, center). Apparently, the main reason is budget cuts by 2010 in research .

The first issue of the journal monograph on FER, "Genome. Research and Society , Palau wanted to highlight that" the economic context is not the best and rare diseases probably will suffer " researcher in the field, where the 2010 budget " will cover the same funding as in 2009, with no added investment growth or ". In his view, although this year "may continue the ongoing investigation" , it will not in 2011, "This will require significant investment to make a new" .

For this expert among the unfinished business of our country for the treatment of these conditions is that the primary care services and specialized reorganize "structural and comprehensive manner in the face of rare diseases."

The rare diseases "are very different diseases to each other as to have a common response by the health system" he said. In As for specialized care, Palau advocates an integrated multidisciplinary include "units and reference centers patients can go for diagnosis, reviews, control treatments, clinical trials, etc.". The creation of a circuit of these features "allow the person affected to be more attended, who felt more loved and less forced to go from one place to another."